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Parcours et qualité de vie des patients atteints de mucoviscidose. Premiers résultats de l’enquête « Mucoviscidose, famille et société »

Gil Bellis, Patricia Thauvin, Kamel Nait Abdellah, Sandrina Ragazzi Avec la collaboration d’Élodie Baril, Léo Daudré et Lou Taillandier
Documents de travail
, 2023
Cystic fibrosis is a rare, chronic, and progressive genetic disorder, usually diagnosed in early childhood. In view of the seriousness of this disease, various measures have been implemented in France, including the creation of a national register to monitor affected ...